Some links may be affiliate links. I may get paid if you buy something or take an action after clicking one of these. Having a baby in the NICU is one of the most difficult experiences a parent can go through. It’s so important to support these parents in appropriate and helpful ways. I’m sure most of you know already that my daughter Josephine was born with a rare birth defect called Pierre Robin Sequence. As a result of her condition, she had a lot of difficulty breathing and feeding for the first few weeks of her life, so she spent that time in the NICU. My husband and I…
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What Is Pierre Robin Sequence? Josie’s Journey, Part 1
Hey everyone! Welcome to my blog! As I mentioned in my previous post, I’ve decided to (re)start my blog in order to share the story of my daughter, and her journey with a rare birth defect called Pierre Robin Sequence. Our Story Josephine was born with Pierre Robin Sequence, or PRS for short. We had no idea this condition even existed until the moment Josie was born. She came out blue due to lack of oxygen, and the doctors and nurses immediately realized that something was very wrong. The on-call neonatologist rushed in to my delivery room. He identified the source of the issue within minutes: Josie had a small…
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I’m back!
Hey everyone! Welcome to my blog! I just wanted to start out with a quick intro post to let you all know what I’m planning for this blog. As some of you might remember, I actually started this blog a couple years ago and I used it to mainly talk about low carb food and my crazy cat horde. Unfortunately I didn’t keep up with it because I got a new job, got married, and had a baby in pretty quick succession. In other words, life got REAL, real quick. But now that things have settled down a bit (do they ever really settle when you have a kid though?)…
