Some links may be affiliate links. I may get paid if you buy something or take an action after clicking one of these. I’m in the middle of writing down my entire NICU story and it’s getting pretty heavy, so I wanted to take a break and write about something that’s been on my mind lately. Drool. Yeah, my life has pretty much been all about drool for the past 11 months. My daughter has a cleft palate so it seems like the stream of drool flowing from her mouth is never ending. I thought I’d share some ways I’ve found to deal with this issue and make the best…
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What Is Pierre Robin Sequence? Josie’s Journey, Part 1
Hey everyone! Welcome to my blog! As I mentioned in my previous post, I’ve decided to (re)start my blog in order to share the story of my daughter, and her journey with a rare birth defect called Pierre Robin Sequence. Our Story Josephine was born with Pierre Robin Sequence, or PRS for short. We had no idea this condition even existed until the moment Josie was born. She came out blue due to lack of oxygen, and the doctors and nurses immediately realized that something was very wrong. The on-call neonatologist rushed in to my delivery room. He identified the source of the issue within minutes: Josie had a small…